United States of America
Priscilla Ciccariello National Marfan Foundation 382 MAin Street Port Washington, New York 11050 USA Tel: ++1 516 883-8712 Fax: ++1 516 883-8040 Toll Free: 1-800-8-MARFAN (1-800-862-7326) E-mail: staff@marfan.org
Australia
New South Wales, Australia Marfan Support Group Trudy Whaite mail@marfan.net.au www.marfan.net.au Syndey - ++61 (02) 8230-0424
Queensland, Australia Susanne Hemphill Marfan Association, Queensland Branch P.O. Box 294 Sumner Park, Queensland 4074 Australia Telephone: ++61 7 3376 6160 Fax: ++61 7 3279 1927 e-mail: marfanaustralia@hotmail.com Victoria, Australia Marfan Association Victoria Inc. Sally Ferguson, President PO Box 42 Sunbury, Victoria. 3429 Australia Telephone: ++61 3 5784 1357 Fax: ++61 3 5784 1357 e-mail: yvette1@bigpond.com jnix@ssc.net.au
Belgium
Yvonne Flemal - Jousten Association Belge du Syndrome de Marfan 27A, rue Residence Air Pur B 4623 - Magnee Belgium Telephone: ++32 43 55 13 59 kontaktgroep Marfan Myriam Criel Van Hemelrijcklei 45 B2930-Brasschaat Belgium tel: ++32 3 653 1950
Brazil
Fundação Marfan Brasil http://www.marfan.com.br
Canada
Laura Libralesso Canadian Marfan Association Central Plaza Postal Outlet 128 Queen St. S., P.O. Box 42257 Mississauga Ontario L5M 4Z0 Canada Home Page: http://www.marfan.ca E-Mail: marfan@istar.ca Telephone: (905) 826-3223 Fax: (905) 826-2125
Cuba
Carolina Douglas Cuban Association of Marfan Syndrome Calle 34 No. 310, apto2 e/ 3a y 5a Ave Miramar, Playa Ciudad de la Habana 11 300 Cuba
Denmark
Landsforeningen for Marfan Syndrom c/o Ms. Bodil Davidsen Frederikshave 34 ST.TH 3400 Hillerod Denmark Telephone: ++45 42 26 3652 Fax: ++45 42 26 3752
Finland
Seija Forsstrom Suomen marfan-yhdistys ry Kalkkirannantie 136 SF-01150 Soderdulla Finland Telephone: ++358 9 272 1083 E-Mail: seija.forsstrom@aktia.fi
France
Annette Belloncle Association Syndrome de Marfan Amis d’Antoine (A.S.M.A.A.) B.P. 63-95160 Montmorency France Telephone: ++33 1 39.64.56.12 Paulette Morin Association Francaise du Syndrome de Marfan (A.F.S.M.) 13, alley Des Terrasses 77200 Torcy France Telephone: ++33 1 64 62 03 75 Fax: ++33 1 60 05 79 10
Germany
Marfan-Hilfe (Deutschland) e.V. Attn. Prof, Dr. Steinhilber, Postfach 2022 59010 Hamm. Germany E-Mail: Wa-Gu.Falkenstein@t-online.de Home Page: http://www.marfan.de Tel/Fax: ++49 2381 12243 Tel: ++49 2381 2
Great Britain
Diane Rust Marfan Association UK Rochester House 5 Aldershot Rd. Fleet, Hampshire GU13 9NG United Kingdom Home Page: www.marfan.org.uk E-Mail : webmaster@marfan.org.uk Telephone: ++44 12 52 810472 Answerphone: ++44 12 52 617320 Fax: ++44 12 52 810473
Holland
Contactgroep Marfan Nederland Postbus 132 3720 CC Bilthoven Home Page: http://www.contactgroepmarfan.nl E-Mail : info.marfan@shhv.nl Telephone ++31 30-659 46 55 Fax: ++31 30-656 36 77
Italy
Associazione Vittorio per la Sindrome di Marfan e Malattie Correlate c/o Silvia Salice Str. Mongreno 82 10132 Torino Italia Telephone: +39 011 898 0995 Home page : http://www.marfan.info
Japan
Masayo Koto 2-2-31 Fukata-cho Minokamo-shi Gifu-ken 505 Japan Home page: http://www.asahi-net.or.jp/~wc8m-ktu/ E-Mail: wc8m-ktu@asahi.net.or.jp Telephone/Fax: ++81-574-26-1734
Mexico
Marcos and Geraldine Duran CDA de Sierra Itabe 40 Real de las Lomas C.P 11920 Mexico, D.F. Mexico Telephone: ++596 06 60
New Zealand
Alan and Mary Balchin 23 Findlay Street Linden, Tawa New Zealand
Norway
Erik Myrseth Foreningen for Marfan Syndrom Vakleiva 105 N-5062 Bones Norway Tel(Home): ++47 55 12 3025 Tel(Work): ++47 55 22 5653 (direct line) Fax(Work): ++47 55 22 5651 (shared line) E-mail: Emy@nera.no
Poland
Polish Marfan Association Swietojanska 49/17 81-597 Gdynia Poland Tel(Office): +48 58 620 97 23 Fax +48 58 629 44 25 Tel(Home): +48 58 624 46 96 www.marfan.pl marfan@marfan.pl
Slovakia
Maria Dusinska Slovak Marfan Association Institute of Preventive and Clinical Medecine Limbova' 14 83301 Bratislava Slovakia Tel: ++42 17 3789 248 Fax: ++42 17 373 906 E-mail: dustinska@upkm.sanet.sk
Singapore
Willie Loh Chung Wei Blk 190A RiverVale Drive #12-988 Singapore 541190 Republic of Singapore E-Mail: lchungwe@pacific.net.sg Telephone: (65) 3869098. Pager: (65) 92892740 for faster response. Singapore Marfan Support Group E-mail: marfan_sing@pacific.net.sg
South Africa
South African Marfan Syndrome Organisation Suid-Afrikaanse Marfansindroom Ondersteuningsgroep P.O.Box 7294 Pretoria 0001 South Africa Tel: ++012 333 9366
Sweden
Ingrid Karlsson Svenska Marfan-Foreningen Box 16264 S-10324 Stockholm Sweden Tel: ++46 18 42 5021
Switzerland
Gerhard Zumstein c/o Marfan Stiftung (Schweiz) Postfach CH-4901 Langenthal Switzerland Tel: ++41 62 923 1508 Fax: ++41 62 923 1661
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